urgente articoli!

[Alejandrina]

Salve a tutti,
volevo chiedervi, se qualcuno sa come fare per scaricare articoli da " Wiley online library", non cè nessun modo se non a pagamento?
Ho provato anche con il proxy dell'unveristà, ma non me lo fa scaricare.

Sto cercando articoli sulla psicooncologia pediatrica: l'impattivo emotivo che la malattia ha sul bambino, focalizzando l'attenzione su come il cancro modifichi la relazione bambino/genitore.
Ma purtroppo non riesco ad accedere a molti articoli, qualcuno a qualche consiglio da darmi?

Grazie a chi mi risponderà!

[willy61]

Non è la banca dati della Wiley, ma magari ti possono essere utili:

The experience of caregivers of hematological cancer patients undergoing a hematopoietic stem cell transplant: a comprehensive literature review.
By: Beattie, Sara; Lebel, Sophie. Psycho-Oncology. Nov2011, Vol. 20 Issue 11, p1137-1150. 14p. 3 Charts. Abstract: Objective: Hematopoietic stem cell transplant (HSCT) is a demanding procedure with associated physical and psychological sequelae that affects patients and their families. Caregivers to HSCT patients not only have to cope with the life-threatening nature of the disease and treatment, but they also have care-giving responsibilities. This study reviews the literature on the psychosocial impact of being a caregiver to a HSCT patient. Methods: A critical review of the literature published before June 2010 was conducted. Databases searched included CINAHL, Medline, PsycInfo, and Academic Search Complete, as well as a comprehensive reference review. Studies that pertained to caregivers of children (under the age of 18) undergoing a HSCT or caregivers to patients with non-hematological malignancies were excluded. Sixteen quantitative research articles and three qualitative research articles were reviewed and analyzed. Results: Caregiver distress is highest pre-transplant and decreases over time, and caregivers display distress levels comparable to or higher than patients' reported distress levels. Predictors of caregiver distress include female gender, elevated subjective burden, and higher patient symptom distress. Caregivers reported uncertainty, fear of the future, juggling patients' needs with their own, and difficulties adapting to role changes; however, they also reported positive aspects to care giving, such as personal growth and developing a more positive relationship with the patient. Conclusions: There are many limitations to the current research and future directions should include both members of the dyad to evaluate the reciprocal relation between caregiver and patient variables, as well as theory-driven research and research with direct clinical applications. Copyright © 2011 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] DOI: 10.1002/pon.1962. (AN: 66674946)
Argomenti: CAREGIVERS -- Psychology; BURDEN of care; HEMATOPOIETIC stem cells -- Transplantation; BLOOD -- Cancer; PSYCHOSOCIAL factors; DISTRESS (Psychology)
Database: Psychology and Behavioral Sciences Collection

Exploring predictors of optimism among parents of children with cancer.
By: Fayed, Nora; Klassen, Anne F.; Dix, David; Klaassen, Robert; Sung, Lillian. Psycho-Oncology. Apr2011, Vol. 20 Issue 4, p411-418. 8p. 5 Charts. Abstract: Objective: To explore predictors of optimism in parents of children with cancer. Methods: A cross-sectional multi-centre study of 411 parents of children in active treatment for cancer was conducted. The Life Orientation Test-Revised was used to assess optimism. Other appropriate items and standardized questionnaires were used to assess parent and child characteristics. Predictors of optimism were explored using simple and multiple linear regression modelling techniques. Results: The presence of positive intrapsychic traits, such as self-esteem and mastery, was more predictive of parental optimism than factors related to child cancer, such as the child's prognosis. Intrapsychic traits combined with an absence of parental depression, the parents' perception of the child's prognosis and parent education level predicted over 50% of the variance in parent optimism. Correlations between parents' and oncologists' view of the child's prognosis were low. Conclusions: Positive intrapsychic traits are important predictors of optimism in the presence of a parent's positive view of the child's prognosis and higher education levels in the absence of depression. The results also favour the perspective of optimism as a trait of the parent who is resilient to a life stressor, such as dealing with childhood cancer. Additional knowledge about the role of optimism in caregiving for a child with cancer is needed before it can be explored for assessment or intervention purposes. Copyright © 2010 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] DOI: 10.1002/pon.1743. (AN: 59444910)
Argomenti: OPTIMISM; PARENTS of sick children; CANCER in children; ONCOLOGY; PARENT & child; CROSS-sectional method; PROGNOSIS; REGRESSION analysis

Communicating with child patients in pediatric oncology consultations: a vignette study on child patients', parents', and survivors' communication preferences.
By: Zwaanswijk, Marieke; Tates, Kiek; van Dulmen, Sandra; Hoogerbrugge, Peter M.; Kamps, Willem A.; Beishuizen, A; Bensing, Jozien M. Psycho-Oncology. Mar2011, Vol. 20 Issue 3, p269-277. 9p. 6 Charts. Abstract: Objective: To investigate the preferences of children with cancer, their parents, and survivors of childhood cancer regarding medical communication with child patients and variables associated with these preferences. Methods: Preferences regarding health-care provider empathy in consultations, and children's involvement in information exchange and medical decision making were investigated by means of vignettes. Vignettes are brief descriptions of hypothetical situations, in which important factors are systematically varied following an experimental design. In total, 1440 vignettes were evaluated by 34 children with cancer (aged 8-16), 59 parents, and 51 survivors (aged 8-16 at diagnosis, currently aged 10-30). Recruitment of participants took place in three Dutch university-based pediatric oncology centers. Data were analyzed by multilevel analyses. Results: Patients, parents, and survivors indicated the importance of health-care providers' empathy in 81% of the described situations. In most situations (70%), the three respondent groups preferred information about illness and treatment to be given to patients and parents simultaneously. Preferences regarding the amount of information provided to patients varied. The preference whether or not to shield patients from information was mainly associated with patients' age and emotionality. In most situations (71%), the three respondent groups preferred children to participate in medical decision making. This preference was mainly associated with patients' age. Conclusions: To be able to adapt communication to parents' and patients' preferences, health-care providers should repeatedly assess the preferences of both groups. Future studies should investigate how health-care providers balance their communication between the sometimes conflicting preferences of patients and parents. Copyright © 2010 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] DOI: 10.1002/pon.1721. (AN: 58567883)
Argomenti: NETHERLANDS; CHILD patients; TUMORS in children; CANCER in children; CANCER -- Treatment
Database: Psychology and Behavioral Sciences Collection

Transitioning childhood cancer survivors to adult-centered healthcare: insights from parents, adolescent, and young adult survivors.
By: Casillas, Jacqueline; Kahn, Katherine L.; Doose, Michelle; Landier, Wendy; Bhatia, Smita; Hernandez, Joanna; Zeltzer, Lonnie K. Psycho-Oncology. Sep2010, Vol. 19 Issue 9, p982-990. 9p. 2 Charts. Abstract: Objective: To determine Latino adolescent and young adults (AYA) cancer survivors' perceived barriers or facilitators to transition from pediatric to adult-centered survivorship care and to also assess the parents' perspective of care. Methods: Partnering with a community-based organization that serves Latino survivors, we conducted a qualitative, constant comparative analytic approach exploring in-depth themes that have salience for Latino pediatric cancer survivors seeking care in the adult healthcare setting. Twenty-seven Latino AYA survivors (⩾15 years of age) completed key informant interviews and 21 Latino parents participated in focus groups. Results: Both AYA survivors and parents identified two major facilitative factors for survivorship care: Involvement of the nuclear family in the AYA's survivorship care in the adult healthcare setting and including symptom communication in late effects discussions. Barriers to care included: perceived stigma of a cancer history and continued emotional trauma related to discussions about the childhood cancer experience. Conclusions: Barriers to survivorship care include cancer stigma for both patient and nuclear family, which can impact on seeking survivorship care due to constraints placed on discussions because it remains difficult to discuss ‘cancer’ years later. Future research can evaluate if these findings are unique to Latino childhood cancer survivors or are found in other populations of AYA cancer survivors transitioning to adult-centered healthcare. This community-based participatory research collaboration also highlights the opportunity to learn about the needs of childhood cancer survivors from the lens of community leaders serving culturally diverse populations. Copyright © 2010 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] DOI: 10.1002/pon.1650. (AN: 53323778)
Argomenti: CANCER in children; CANCER -- Patients; HISPANIC Americans; YOUNG adults; STIGMA (Social psychology); ONCOLOGY

Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi-center study.
By: Vrijmoet-Wiersma, C. M. Jantien; Hoekstra-Weebers, Josette E. H. M.; Margreet de Peinder, W. M. G.; Koopman, Hendrik M.; Tissing, Wim J. E.; Treffers, Philip D. A.; Bierings, Marc B.; Jansen, Nathalie C. A.; Grootenhuis, Martha A.; Egeler, R. Maarten. Psycho-Oncology. Apr2010, Vol. 19 Issue 4, p368-375. 8p. 3 Charts. Abstract: Objectives: Diagnosis and treatment of childhood cancer are continuous stressors in the lives of the entire family involved. Disease-related tools for the assessment of parental stress and adaptation are scarce. For that reason, the Pediatric Inventory for Parents (PIP), a disease-related measure, was translated into Dutch and its psychometric qualities were determined to prove its value. Methods: The PIP and three other measures (State-Trait Anxiety Inventory, General Health Questionnaire and Parenting Stress Index, Short Form) were administered to 174 parents of 107 children diagnosed with cancer in three university medical centers in the Netherlands. Results: Internal consistency (Crohnbach's α=0.94 and 0.95) and test–retest reliability (Pearson's r between 0.67 and 0.87) of the Dutch PIP total scales are satisfactory. Validity was illustrated by a high correlation between PIP-scores and anxiety and general stress. Confirmatory factor analysis showed acceptable fit to the data for the original four-factor and the one-factor models; the four-factor model showed slightly better fit. Conclusion: The PIP can be used in clinical practice to assess disease-related parental stress. Further psychometric testing is highly recommended. Copyright © 2009 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] (AN: 48946106)
Argomenti: PSYCHOMETRICS; PARENTS; QUESTIONNAIRES; PARENTING; STRESS (Psychology)
Database: Psychology and Behavioral Sciences Collection

Piloting a psycho-education program for parents of pediatric cancer patients in Malaysia.
By: Othman, Azizah; Blunden, Sarah; Mohamad, Norsarwany; Hussin, Zabidi Azhar Mohd; Osman, Zubaidah Jamil. Psycho-Oncology. Mar2010, Vol. 19 Issue 3, p326-331. 6p. 2 Charts. Abstract: Objective: To evaluate a psycho-educational program (PeP) for parents of children with cancer (PoCwC) in Malaysia. Methods: Seventy-nine parents were invited to be either in an intervention (n=41) or a control group (n=38). Baseline assessment took place upon agreement of participation. Short-term effects were measured four weeks after the intervention. Control parents received standard care. Intervention parents received, in addition to standard care, 4×50 min sessions of information on childhood cancer and coping strategies. Results: Repeated measures of ANOVAs revealed increased knowledge about cancer (p=0.01) in the intervention parents compared with standard care. Intervention parents reported reduced anxiety and increased activities with children after the program; however, differences were not significant. Conclusions: This PeP, the first of its kind in Malaysia, has significantly increased levels of knowledge among parents of seriously ill children which may point towards the potential for these services to increase coping in Malaysian PoCwC. Copyright © 2009 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] DOI: 10.1002/pon.1584. (AN: 48357816)
Argomenti: MALAYSIA; CANCER in children; CHILD care; GUARDIAN & ward; WORKSHOPS (Adult education)

Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer.
By: Klassen, Anne; Gulati, Sonia; Granek, Leeat; Rosenberg-Yunger, Zahava; Watt, Lisa; Sung, Lillian; Klaassen, Robert; Dix, David; Shaw, Nicola. Quality of Life Research. Nov2012, Vol. 21 Issue 9, p1595-1605. 11p. Abstract: Purpose: Research looking at the health of parents of children with cancer typically uses outcome measures focused on symptoms of anxiety, depression, or post-traumatic stress. Our team builds on this literature to provide a more comprehensive understanding of the health impact of caregiving. Methods: Interviews were conducted with 79 Canadian parents of children with cancer at least 6 months post-diagnosis. Line-by-line coding was used to establish categories and themes. Constant comparison was used to examine relationships within and across codes and categories. Interviewing continued until no new themes emerged. Results: Parents described health concerns as including sleep disturbance, daytime fatigue, anxiety, depression, social isolation, and changes in social roles. Parents described the positive impacts of caregiving as including gaining a greater appreciation for child and family and developing compassion, empathy, patience, inner strength, and new perspectives on life. Conclusion: Parents of children with cancer can experience a range of health problems due to the emotional impact of a cancer diagnosis and the intensive and often prolonged nature of treatment and aftercare. Given the central role parents play as caregivers, it is crucial to understand the health impact of caregiving so that supportive interventions can be implemented as necessary. [ABSTRACT FROM AUTHOR] DOI: 10.1007/s11136-011-0072-8. (AN: 82503873)

'The end of treatment is not the end': parents' experiences of their child's transition from treatment for childhood cancer.
By: Mckenzie, Sian E.; Curle, Christine. Psycho-Oncology. Jun2012, Vol. 21 Issue 6, p647-654. 8p. 1 Diagram, 1 Chart. Abstract: Objective This study explores parents' experiences of the end of treatment (EOT) for childhood cancer and aims to develop a theoretical understanding of this transition. Method The study used a grounded theory design to develop a theory from 11 semi-structured interviews with parents of children who had finished their cancer treatment. These were transcribed verbatim and analysed. Results The core theme of 'the end of treatment is not the end' emerged and reflected the continued process of role and identity changes that parents faced. The results suggest that the active treatment phase and post treatment phases are interlinked and inseparable for parents. The main process identified during treatment was 'getting through' to the EOT and this was managed through parents 'adjusting' and an 'increase in support'. These core processes continued to mediate the process of 'managing the unknown' after treatment, and parents were left with a sense of 'balancing their emotions' between, 'life is very normal' and 'it's not going to go away'. Conclusions Across all themes the process of managing identity changes emerged as a key issue for parents, which needs to be considered. During treatment, health professionals have an opportunity to discuss the impact of finishing treatment and prepare parents for this transition and the challenges that they may face. Copyright © 2011 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] DOI: 10.1002/pon.1953. (AN: 76304255)
Argomenti: CANCER in children; GUARDIAN & ward; PARENTS; TRANSITION (Rhetoric); MEDICAL personnel
Argomenti: CAREGIVERS -- Services for; CANCER in children; SYMPTOMS; ANXIETY; QUALITY of life; MENTAL depression; CANCER -- Diagnosis; OUTCOME assessment (Medical care)
Database: Psychology and Behavioral Sciences Collection

Per ora questi.

Buona vita

[Alejandrina]

Grazie mille willy, zei stato molto gentile.

[ninfablu]

ciao willy, scusami seti disturbo.
non è che mi potresti essere d'aiuto nel trovare un articolo che mi sta creando un po' di problemi?
l'articolo è
S. Taddei, D. Vanni (2008). Customer-related social stress and burnout. A contribution to the Italian adaptation of the Customer-related Social Stress scale. BOLLETTINO DI PSICOLOGIA APPLICATA, vol. 256, pp. 29-39, ISSN:0006-6761
spero mi possa essere d'aiuto.... grazie mille e scusami per questa richiesta e grazie per la disponibilità..